Three-fourths of essential tremor patients surveyed have never read or heard about essential tremor prior to their diagnosis. Tremor Action Network provides a list of international patient advocacy organizations that offer support for essential tremor and tremor related neurological movement disorders.

Essential Tremor Support

WE MOVE Discussion Forum

Free exchange of information and ideas that assists individuals in finding peer support.

Band-Aides & Blackboards

Uniquely designed website about growing up with medical problems, including the remembrance by a TAN Board member of being different as a child.

The OT Resource

Information, awareness and forum for people with Orthostatic Tremor, their family members and caregivers. OT is a high frequency tremor that occurs in both legs upon standing in a still position and causes sudden, extreme straining in the legs and a strong sense of imbalance.


French-speaking organization which defends the interests of people with essential tremor and wants to make known the importance of this neurological disorder to the general public.

APTES est une organisation francophone qui defend les interets des personnes atteintes de tremblement essentiel et veut faire connaitre l’importance de ce desordre neurologique aupres du grand public. APTES gere un site internet

Yahoo! Tremblement Essentiel

Yahoo health group affiliated with APTES. Un groupe de soutien et de discussion.

International Essential Tremor Foundation

Founded to provide patients with timely information. The organization promotes support groups to help people help themselves.

National Tremor Foundation
United Kingdom charitable trust affiliated with the IETF. Provides information, services and support.

Movement Disorders Support

The Brain Matters

Site to help better understand common disorders of the brain.


Association truly dedicated to helping people find a faster diagnosis and more effective treatment; thus empowering them to achieve a higher quality of life. ST affects approximately 500,000 people in the USA alone.

National Spasmodic Torticollis Association

The NSTA is dedicated to providing information and support to ST patients, educating the public and medical community about ST, advocating for the rights of those with ST, and promoting research on ST.

Parkinson’s Patients Support Groups

PPSG serves the community of Parkinson’s patients, their care-givers, friends and families of the San Francisco Bay Area and beyond. PPSG shares information about the latest treatments, events, and legislation regarding Parkinson’s disease. PPSG produces a newsletter for both local and general audiences.

Northwest Parkinson’s Foundation

Established to make the Northwest a leading world center of movement disorders knowledge and treatment.

Parkinson’s Disease Foundation

National organization devoted to research and advocacy. PDF staff familiar with essential tremor.

Well Spouse Association

Well Spouse is a national not for profit membership organization which gives support to wives, husbands, and partners of the chronically ill and disabled. Support groups meet monthly. Publishes a quarterly newsletter, Mainstay. For more information email [email protected].

Scroll to Top