Advocate

Advocate

Tremor does not discriminate, is worldwide, and knows no age barrier. Gender gap and geography are not obstacles in Shaking the World to Find a Cure. Generations Millennial (Y), X, Baby Boomers, Silent, the Establishment and not yet born inherited or sporadic tremor generations are well represented in the development and implementation of Tremor Action Network (TAN) activities and programs. TAN is dedicated to advocating for the millions of diagnosed and undiagnosed children, adults, and next generations affected by tremor.

Shaking the World to Find a Cure advocates are people, children and adults, who have the capability to effect a cure for tremor. Advocates’ actions are essential to spread awareness of tremor by advocating for a cure through research. TAN’s advocacy agenda includes building a network of advocates to inform the public, government agencies and the health care industry on the universal needs of the tremor population. TAN pledges to promote collaborative advocacy through novel and creative activities.

Brain Awareness Week
TAN in partnership with the Society for Neuroscience (SfN) and Dana Alliance for Brain Initiatives (DANA) since 2005 has accomplished much as a Brain Awareness Week (BAW) outreach partner. BAW is a national and international campaign, recognized by over 2800 partners in 82 countries. BAW offers an opportunity to focus attention on tremor within the broader context of the brain and brain research. TAN requests advocates to participate in Brain Awareness Week to increase local community awareness about movement disorders. BAW activities come in “all shapes and sizes.” TAN has partnered with state and federal officials, medical centers, community colleges, health and science fairs, newspapers, radio and TV stations to spread movement disorders awareness. It is estimated that 40 to upwards of 72 million people have some type of movement disorder.

The SfN challenged anyone to participate in a summer Brain Awareness Video Contest. TAN generated interest among our Brain Bee pool of teachers and students!

International Brain Bee
TAN assists teachers and high school students looking to learn more information about the annual Local Brain Bee competition in the United States. The purpose of the Brain Bee “is an attempt to motivate students to learn about the brain, and to inspire them to pursue careers in biomedical brain research.” Congratulations to Thanh-Liem Huynh-Tran of California for winning the 2011 International Championship!

American Brain Coalition
TAN is a member of the American Brain Coalition (ABC), a coalition for bringing together neurological and psychiatric organizations that represent interested patients, families, and professionals to collectively advocate for increased support of research that will lead to better treatment, services, and support. The organization is also pressing for a national commitment towards finding cures for individuals with disabling neurological and psychiatric disorders. “ABC hopes to achieve the same level of public awareness and support for diseases of the brain that have been realized by the American Heart Association for heart disease and the American Cancer Society for cancer. Only when the public understands how mental illness and diseases of the brain affect 50 million of their relatives, friends, and neighbors will we attract the level of support for research and care needed to prevent, control, and cure these diseases. Each ABC member has a responsibility to network with colleagues in their field so that ABC can achieve this level of awareness.”

TAN complies with ABC’s “request for responsibility” by attending ABC Meetings; in particular the July 29, 2010 Member of Congress in Washington, DC, and the May 23 through 25, 2011 One Mind for Research Forum in Boston, MA. In addition, TAN features ABC articles in the quarterly newsletter, and shares weekly ABC updates with advocates.

Tremor Action Network was inducted as an ABC Member during the 57th American Academy of Neurology (AAN) Meeting.

American Academy of Neurology
TAN was on hand to exhibit at the First Annual Brain Health Fair in Honolulu, HI. More than 1400 consumers attended the Fair!  

Tremor Action Network Advocacy Awards

  • Life In Motion Congressional Letter-writing Campaign 2006
  • Certificate of Special Congressional Recognition 2008
  • American Brain Coalition Advocacy Challenge 2009

Tremor Watchdogs
Be empowered to be heard! Send your own message to the media, state and federal officials. Enter your ZIP Code or search by State at: Contact Lawmakers.

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