TremorAction.org Newsletter: December issue
Read inspiring articles in the December-Holiday issue for a better understanding of living with essential tremor, cervical dystonia, and tremor related neurological movement disorders. Diana Herring, MN, ARNP of Northwest Hospital and Medical Center shares DBS benefits
are achieved with a team that has plenty of experience. Esther Baldinger, MD offers a survey to help learn more about ET. Flavia Waissman, RPT and Joao Pereira, MD provide therapeutics perspectives for Writer's Cramp. Terri Sterling, MSP teaches the meaning of dystonia. JobEnable connects disabled job applicants with employers. CTAP services CA residents who have difficulty using standard phones. Romert raises funds for TAN without spending a penny.
Survey of Essential Tremor
A very important question is whether all ET patients have the same disease? Esther, Baldinger MD offers a survey that allows the survey participant to express their own ideas. A summary of the results will be published.
CleveMed Computer Mouse Study
Joseph P. Giuffrida, PhD is recruiting 10-15 volunteers with essential tremor in or near the Cleveland area to participate in a clinical study with CleveMed's computer mouse that is designed to filter out tremor. The two criteria for participation are: the volunteer should have a moderate to severe tremor, and be proficient in using a computer mouse. For additional study information please contact Dr. Giuffrida at 216-619-5904 or send an email to: jgiuffrida@clevemed.com.
Trace Touch Screen Study
The Trace Center at the University of Wisconsin-Madison is looking for individuals who have movement disorders of their arms or hands to participate in a study for evaluating usability of information technology, If you would like to help the Trace Center in making information technology devices that are more accessible, please contact Bob Meyer at 608-263-3827 or send an email to: meyer@trace.wisc.edu.
Riboflavin Study
Dr. Esther Baldinger and Long Island Hospital College in Brooklyn, New York are recruiting essential tremor patients for a follow-up double blind study to further assess the effectiveness of Riboflavin for the treatment of ET. This study will evaluate patients four times: At baseline, with no Riboflavin treatment and then every six weeks on three different doses of Riboflavin, one of which will be low and will act as the placebo phase. Neither the patient or the doctor will know the order in which the doses will be given. Patients must be able to travel to Brooklyn, New York to participate. Any person willing to participate in this study should contact Dr. Baldinger at (718) 232-1570.
Carisbamate Research Study
Sponsor Ortho-McNeil Janssen Scientific Affairs, LLC is conducting a research study to determine if the experimental drug Carisbamate is effective and safe for the treatment of essential tremor.
This study is currently recruiting participants in Fountain Valley, CA, Sunnyvale, CA Boca Raton, FL, Jacksonville, FL, Port Charlotte, FL,
St. Petersburg, FL,
Springfield, IL,
Kansas City, KS,
Elkridge, MD,
Bingham Farms, MI,
Kingston, NY,
Brentwood, TN,
Dallas, TX,
Houston, TX,
San Antonio, TX and
Spokane, WA. For more information click on the link, To learn how to participate in this trial.
NINDS Seeks Persons With Essential Tremor
Scientists at NINDS are conducting an inpatient study using an experimental medication called 1-octanol for the treatment of essential tremor. The study requires 2 visits: a 1-day screening visit and a 4-day hospitalization. The study takes place at the NIH Clinical Center in Bethesda, MD. All travel and study-related expenses will be paid by NIH. For more information please contact Loretta Wittevrongel, Human Motor Control Section, Medical Neurology Branch, at 301-435-2163. Please refer to study 05-N-0092. The current Phase of this study is filled to capacity but contact information is being collected for the next Phase.
ANS TRIAL
Advanced Neuromodulation Systems, Inc. has received FDA approval to evaluate the device, the Libra DBS system for people with essential tremor of the arm and or hand that is not adequately controlled by drugs. Participants must be 18 years old and diagnosed with essential tremor for 3 years.
JobEnable
JobEnable.com´s goal is to assist individuals with disabilities in finding employment. Job seekers are able to post resumes and search the job database for available positions. For information and support complete the form available on the website or email support@jobenable.com.
Solstice Neurosciences Presents Escalating Dose Study
The first multicenter study to confirm patient safety and efficacy of escalating treatment doses of 10,000 Units, 12,500 Units and 15,000 Units of Botulinum Toxin Type B in patients with Cervical Dystonia (CD).
Colloque Scientifique Tremblement Essentiel et Syndromes Apparentés
Tremor Action Network is pleased to inform French speaking and interested website visitors that the Essential Tremor Congress hosted by APTES is scheduled for February 8, 2008, in Paris at the Palais du Luxembourg.
AAN 60th Annual Meeting: Chicago
Tremor Action Network is participating in the AAN Exposition 2008 April 14 through April 17. Stop by Booth 332b to receive informative resources and discuss the services TAN provides.
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