The American Brain Coalition (ABC)
The coalition, spearheaded by the
AAN and the Society for Neuroscience, is bringing together neurological and psychiatric
organizations that represent interested patients, families, and professionals to collectively
advocate for increased support of research that will lead to better treatment, services, and
support. The organization is also pressing for a national commitment towards finding cures for
individuals with disabling neurological and psychiatric disorders.
Under the direction of Francis I. Kittredge, Jr., MD, chair of the coalition, "ABC hopes to
achieve the same level of public awareness and support for diseases of the brain that have been
realized by the American Heart Association for heart disease and the American Cancer Society
for cancer. Only when the public understands how mental illness and diseases of the brain
affect 50 million of their relatives, friends, and neighbors will we attract the level of
support for research and care needed to prevent, control, and cure these diseases. Each ABC
member has a responsibility to network with colleagues in their field so that ABC can achieve
this level of awareness."
Tremor Action Network was inducted as an Associate ABC Member during the 57th American
Academy of Neurology (AAN) Meeting.
For more information on the ABC and its advocacy issues, visit their website at www.americanbraincoalition.org
or contact Katie Sale at ksale@americanbraincoalition.
org or (763) 557-2913.
Reference: American Brain Coalition, 2005. ABC Gains Members. AAN News, July.
Life in Motion
The
nationwide initiative is designed to raise awareness about movement disorders and improve the
quality of care for the estimated 40+ million Americans who are living with these disorders,
including essential tremor, Parkinson's disease, dystonia, restless legs syndrome, spasticity
and others.
Fifty patient advocacy organizations, foundations, and professional societies have joined a
coalition in support of the Life in Motion campaign. Like WE MOVE, coalition members are
committed to raising awareness about movement disorders, emphasizing the importance of early and
accurate diagnosis, and illustrating available treatment options.
Life in Motion launched at the 57th AAN meeting and will continue through 2006. The
Campaign includes media outreach, public service announcements, and community outreach highlighting
real stories of people living with movement disorders. Additionally, through the efforts of
Life in Motion, October has been designated Movement Disorders Awareness Month.
Tremor Action Network is pleased to join a coalition in support of WE MOVE's Life in
Motion awareness campaign. If you are interested in participating in Life in Motion
or contributing a story of a person living well with a movement disorder, we encourage you to
contact TAN.
Healthcare professionals and people living with movement disorders are encouraged to visit
the online Life in Motion Resource Center where they will find information and support
resources including...
- downloadable fact sheets about movement disorders
- database of national movement disorder advocacy groups and foundations
- a video depicting what life is like with a movement disorder
- downloadable brochures to help patients more effectively communicate with
their healthcare team.
To learn more, please visit the Life in Motion website at:
http://www.life-in-motion.org
Or call the toll-free number:
866-LIM-3136 (866-546-3136)
The Life in Motion campaign is funded by an unrestricted educational grant from
Allergan, Inc.
Reference: Life in Motion, 2005. Life in Motion Announcement.
Press conference
presented at the AAN Annual Meeting, Florida, April 2005.
Brain Awareness Week
Tremor Action Network in partnership with the
Society for Neuroscience (SfN) and Dana Alliance has accomplished much during the first two
years as a Brain Awareness Week outreach partner. TAN's 2005 BAW Report and
2006 BAW Report are available on the SfN website.
Brain Awareness Week (BAW) is a national and international campaign, recognized by 1700
organizations in 57 countries. BAW offers a rare opportunity to focus attention on essential
tremor and related movement disorders within the broader context of the brain and brain research.
TAN requests participation in the Twelfth Anniversary of Brain Awareness Week - March 12-18,
2007 to increase local community awareness about movement disorders. BAW activities come in the
following "shapes and sizes..."
- Society for Neuroscience Brain Fact Book: A hard copy or PDF version for
the local library, hospital or healthcare provider office.
- TAN Awareness
Message Cards: Spread awareness of essential tremor during BAW. The card is
designed to hand out to friends, family members, caregivers, co-workers, merchants, and medical
professionals. Health care providers within and outside the field of neurology may be interested
in displaying cards in their office, and giving to patients with essential tremor.
- TAN
Newsletter: The March 2006 issue of Spikes & Spasms
features BAW "Get Connected" articles.
- Contact the
Media: Call or email local newspapers, radio and TV stations. Share a personal
story; e.g., Controlling Tremors. BAW is a wonderful opportunity to spread movement
disorder awareness. It is estimated that 40 to upwards of 72 million people have some type of
movement disorder.
- Proclaim Brain Awareness Week: Contact officials' offices. Officials
have standard procedures for issuing a proclamation. TAN Advocate Judy Yeo was issued
a Proclamation from Governor Dave Freudenthal of Wyoming in 2005 and 2006!
- Partnerships
: TAN partners with Las Positas College of Livermore, CA. View a list of national
and international partners.
2007 BAW Calendar of Events
- March 14
Las Positas College Brain Awareness Faire: TAN sponsored an exhibit that included low-tech simulations
for Brain Awareness Faire visitors to learn first-hand what it is like to cope with the day-to-day challenge of living with a movement disorder. TAN featured the Life in Motion Campaign award
winning video and movement disorder resources to raise awareness of more than 40 million
Americans living with movement disorders. TAN is a coalition member of the Campaign which is
sponsored by WE MOVE. Tri-Valley Herald staff writer Lea Blevins interviewed Board member
Kathleen Welker for her article, Plugging into the brain.
- TAN Advocate Judy Yeo stopped by the office of Wyoming Governor Dave Freudenthal, and
also visited with Wyoming Secretary of State, Max Maxfield. Governor Dave Freudenthal
proclaimed Brain Awareness Week 2007 on behalf of Tremor Action Network.
Secretary of State Maxfield expressed positive response in knowing about Tremor Action
Networks dedication in promoting essential tremor awareness, as he has recently made
known his diagnosis of essential tremor.
- WBEE 92.5 FM of Rochester, NY aired
a daily BAW PSA at the request of Board member Mary Jane Donnelly.
- March 28 Alameda County Fairgrounds Science Fair: Tremor Action Network sponsored
an exhibit with Valley Health Care that included DANA and Life In Motion campaign resources
for Science Fair visitors to learn first-hand about the brain and movement disorders. TAN
featured printed materials, low-tech simulations for essential tremor and Parkinson's,
and the award winning Life In Motion video.